At the moment he has received 4 loading doses of this drug, but being only the supporting therapy Vadim needs Zolgensma, one-shot genetic therapy drug to stop stop SMA and its costs is beyond the possibilities of his family.
Special equipment
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Ilya is three and a half years old, he is happy and smiling, like any other child. But due to his illness and without due cure he will stay handicap.
Sasha’s parents believe that they will see first steps, first success of their kid and will go with their life soon. But for that Sasha needs his shot of Zolgensma, a one-time shot genetic therapy. Only together we can realise his dream. Your help is very important for Sasha.
This device is already used to stimulate the cell synthesis, to activate blood circulation and to activate the regeneration of tissues which is essential for a healthy growth of muscle tissue.
At the moment the baby is breathing autonomously for 12 hours a day, move his hands, a little with his legs and head. The specialists give some good prognosis if cured and undergoing the rehabilitation. Only one shot of Zolgensma can save Anri and the fundraiser should complete as soon as possible.
