Our charity foundation has been founded in October 2020 to help babies with spinal muscular atrophy in order to help them get extremely expensive treatment with Zolgensma (www.zolgensma.com).

At the moment families with kids diagnosed with SMA in Russia are not supported either by insurance or by the Government. The only hope that they have is us and our help! Let’s join our forces all over the world in order to save these babies lives!